SDR Selective Dorsal Rhizotomy FinleysSdrStory

SDR • Discharged!

SDR • Discharged!

Day 5 finally arrived! Hallelujah. 

We got a good amount of sleep, since she had no wires and wouldn't likely be vomiting I was able to sleep in bed with her. We are used to co-sleeping so this felt like a little slice of heaven. (Let's just say I'm gonna need a massage after the last 5 nights) but it's alllllll worth it! 

SDR • Day 4

SDR • Day 4

Not a bad night. I woke up with a definite crick in my neck. But happy to have gotten rest! Daddy is up and I'm going to get coffee and breakfast. She was talking up a storm and being hilarious. Very lively. We went to our morning therapy at 10:00am.  She was supposed to take oral Tylenol 30 minutes before therapy, but she refused. So we had to give her the other kind. Which was so easy, that's what kind I'm taking home, lol. I put some shorts on her, picked her up and we headed out! 

SDR • Day 3

SDR • Day 3

Oh Day 3. We were ready for you (or so we thought).  Given the Nature of Day 1, we were confident the worst was behind us. We woke up to Daddy arriving, per the usual. No coffee this time because it was 6am and the Starbucks cafe doesn't open until like 8. Ludacris.

SDR • Day 2

SDR • Day 2

Today is a new day.  We made it through the night seizure-free, so I'm feeling pretty good. Having roommates definitely makes for a more challenging night, but Fin seems to get a couple hours of sleep at a time, so I'm grateful for that. Rest is good, especially after yesterday.